Friday, July 2, 2010

This is crazy

Well Mom is not on hospice after all because the doctor who told us she had a few days to two weeks to live now says he didn't say that.

Seriously.

Like we just made this shit up?

So with no definitive diagnosis that says she will be dead within six months, hospice can't take her and she's just under nursing home care.

We are happy about that, don't get me wrong. Happy that we may have her longer, and she does seem better, but the roller coaster of emotions has been ridiculous.

I'm afraid to even hope for the best.

19 comments:

ain't for city gals said...

I'm starting to think she might need a different doctor...he doesn't seem to know what he is doing from one day to the next...

Chocolate Covered Daydreams said...

That's got to be insanity for you! Hang in there!

Blissed-Out Grandma said...

Sorry you're having to endure the craziness. The 6-month limit on hospice coverage is so arbitrary it creates all kinds of problems, just adding to what is already difficult.

gayle said...

Thinking of you!! Glad your mom is feeling better!!

Mellodee said...

Your doc sounds like he made a premature prognosis that has turned out to be wrong and now he'd rather deny than to admit an error!

Bubbles1206 said...

I am so sorry you are having to experience this. I am a Hospice nurse and know it is NOT an easy process. Just know that when the time is right there is no greater support than a hospice team. Live and love in the moment........

Fragrant Liar said...

Man, that sucks! Something similar happened to my son-in-law's father, in that they said he has a week to live, and now two years later, he's still hanging in there. Just proves that doctors still have much, much more to learn and their expert advice is sometimes just their best guess.

Glad you have some more time with your mom and that she makes a surprising and speedy recovery.

Christiejolu said...

I agree with the first comment...I am hoping for the best for you and your family!

AirmanMom said...

Hugs and prayers! May your mom be on a healing path and may you know strength (even if it is strength not to strangle the doctor!)
~AM

Velveteen Rabbit said...

Just thinking of you Jules and hoping there are not many more big dips x

TAG said...

So sorry for the insanity the doctor is putting you through.

Frankly, if I were you, I'd be looking hard for a different doctor. What he has done does not lead me to trust his judgment at this or anything else.

TAG

pilgrimchick said...

Wow--that is tough. I hope some concrete certainties are just around the corner.

dana said...

As my 54 year old brother lay dying, the doctor said "If only he wasn't a drinker, we could save him" My sister and I said "He doesn't drink". Unfazed, the Dr said "If only he didn't smoke, we could save him". We answered that he didn't smoke.

His answer? "Well, I"m sorry, but he IS dying"

I answered: "So? He doesn't drink and doesn't smoke: SO SAVE HIM"

Yeah. When you're in their hands, it's mostly a case of "screwed".

LV said...

Time will take care of everything. Blessings to you and all your family. This is a terrible frustrating thing for all of you to be going through.

Dr. Penny said...

This IS the best, darlin', every flippin' moment is in perfection! You don't have to hope for it, it is here. Just enjoy her in this moment, and don't worry about the next -- put it all into God's hands and know He will take care of her. Your job is just to love her.

Under no circumstances should a doctor say someone is going to die in "X" amount of time -- people die when they are ready. Must be why they call their business a practice, huh?? When they told my mom she had 3 months, she beleived them and died to the day. Kept asking my sister and I when her expiration date was, for cryin' out loud!

Do we need to go have a drink or two?

Danica said...

Sending hugs. It's terribly frustrating working with doctors!

Vegas Linda Lou said...

That sucks. Hard to have much confidence in those doctors, huh? It's too bad she couldn't get into the hospice program. They take such good care of patients, they often live much longer than their initial prognosis. My grandmother lasted two and a half years in hospice--it's not a death sentence, just the opposite.

Hugs to you, Julie, and prayers for Mom.

I love you,
Linda

Donna B said...

Julie...go call another Hospice...or gather some family and go visit the doctor. You guys can make it happen. Hospice is a wonderful program. The volunteers are Angels on earth and the entire Hospice team is all about the patient, your Mom. Bringing her all the comfort and care she needs and the support, help and relief for all of you. Bless you all. Hugs.

Donna B said...

Julie...Call another Hospice or gather your family and go talk to the doctor. You can show him how much your Mom needs it. Hospice is such a wonderful, loving, caring program. The volunteers and staff are Angels on earth. I don't know what we would have done had it not been for the support, care and relief they provided all of us when my Mother in Law needed them.
Bless you all. Hugs...